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                                             PARTICIPANT CONSENT FORM



Parental Perceptions of the Diagnostic Process for Autism Spectrum Disorder: a Comparison Between Private diagnosis and Government Funded Diagnosis in British Columbia

You are invited to take part in a study that examines the parental perceptions of families who receive a diagnosis of Autism Spectrum Disorder (ASD) in British Columbia. You were invited to participate in this study because you might fall within the inclusion category of having a children with autism under the age of 6 and diagnosed in B.C. Please read this form and ask the researcher any questions you might have before making the decision to participate.
This study is conducted by Ramen Saggu, a doctoral candidate at Walden University.

Background Information:

The purpose of this study is to examine parental perceptions of the ASD process in B.C. across the two routes of obtaining a diagnosis, the government funded BCAAN network and the private diagnosis process.

Procedures:

If you agree to participate in this study, you will be asked to complete a demographics questionnaire and one survey. This should take approximately 20-30 minutes.

Voluntary Nature of the Study:

Your participation in this study is completely voluntary. You may discontinue participation from this study at any time.


Risks and Benefits of Being in the Study:

There are no risks to taking part in this study other than the time it will take to participate in completing the surveys and recalling past feelings of receiving the ASD diagnosis. If you experience significant distress you can discontinue at any time. The apparent benefits to participating in this study are that valuable information will be provided by completing this research. This information can contribute to improving the ASD diagnosis process for families in BC by increasing efforts to improve professional-parents interactions and diagnosticians offering more support on ASD treatment to parents of children diagnosed with ASD.
Compensation:

There will be no compensation to take part in this study.

Confidentiality:

The records of this study will remain confidential. In case of any portions of this research being published, no identifying information will be included. Research records will be kept in a locked file, and can only be accessed by the researcher. You will not have to sign your name or provide any identifying information. By completing the study, your consent is implied. Please feel free to retain a copy of this consent form.

Contacts and Questions:

Researcher:
Ramen Saggu

Contact me at: [email protected]
IRB Approval #: 09-19-14-0187322

“Participants can contact [email protected] for a Walden representative with questions about their participation rights at any time during this study.”