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This is an attempt to find out what the first choice of treatment was after the initial diagnosis. In order to do so I have had to break some of the questions down into two parts. If a second questions is needed you will be automatically branched to that question to answer. Additional Questions about your age, location and diagnosis will appear at after the Treatment Choices.


Thank you very much for your time and support. Please start with the survey now by clicking on the Continue button below.


 
 
Tracking your diagnosis and initial treatment.
* What was the first treatment your received following your initial diagnosis. Only one answer please. You will branch to other questions automatically.
 
HDR Radiation
 
Hormonal Ablation Treatment (by itself)
 
Watchful Waiting (have had no other treatment except supplements, etc.)
 
Surgery
 
Cryosurgery
 
HIFU
 
Other (include treatments not mentioned above)
 
Seed Implants
 
External Beam Radiation (3dEBRT, IMRT, Etc.)
 
 
Please answer the following to further define your treatment.
You answered that you had been treated with a Seed Implant and now we would like to know if other treatments were included.
 
1. I had only a seed implant with none of not more than 3 months (one shot ) of Hormonal Ablation Therapy.
 
2. I was treated with Seed implants and external beam radiation (EBRT) only.
 
3. I was treated with Seed Implants (only) and more than 3 months but 6 months or less of Hormonal Ablation Therapy (HT)
 
4. I was treated with Seed Implants (only) and more than 6 months but less than 18 months of Hormonal Ablation Therapy (HT).
 
5. I was treated with Seed Implants (only) and 18 months or more of Hormonal Ablation Therapy (HT).
 
6. I was treated with Seed Implant and EBRT and more than 3 but 6 months or less of less of Hormonal Ablation Therapy (HT).
 
7. I was treated with Seed Implants and EBRT and than 6 months but less than 18 months of Hormonal Ablation Therapy (HT).
 
8. I was treated with Seed Implants and EBRT and 18 months or more of Hormonal Ablation Therapy (HT)
 
Other
 
 
Please answer the following to further define your treatment.
You answered you had been treated with Surgery and now we would like to know what kind and if other treatments were included.
 
1. Standard Surgery
 
2. Standard Surgery with external beam (any kind)
 
3. Standard Surgery with Hormonal Ablation Therapy (HT) (any kind)
 
4. Standard Surgery with both EBRT and HT
 
5. Laparoscopic Surgery
 
6. Laparoscopic Surgery with external beam (any kind)
 
7. Laparoscopic Surgery with Hormonal Ablation Therapy (HT) (any kind)
 
8. Laparoscopic Surgery with both EBRT and HT
 
9. Robotic Surgery (sometimes referred to as DaVinci surgery)
 
10. Robotic Surgery with external beam (any kind)
 
11. Robotic Surgery with Hormonal Ablation Therapy (HT) (any kind)
 
12. Robotic Surgery with both EBRT and HT
 
Other
 
 
Please answer the following to further define your treatment.
You answered above that you had been treated with a External Beam Radiation Therapy and now we would like to know if other treatments were included.
 
1. I was treated with IMRT (or variation thereof) only
 
2. I was treated with IMRT (or variation thereof) plus 6 months or less of Hormonal Ablation Therapy
 
3. I was treated with IMRT (or variation thereof) plus more than 6 months up to 18 months of Hormonal Ablation Therapy
 
4. I was treated with IMRT (or variation thereof) plus more than 18 months of Hormonal Ablation Therapy
 
5. I was treated with other EBRT (excluding IMRT) alone
 
6. I was treated with other EBRT plus 6 months or less of Hormonal Ablation Therapy
 
7. I was treated with other EBRT plus more than 6 months up to 18 months of Hormonal Ablation Therapy
 
8. I was treated with other EBRT plus more than 18 months of Hormonal Ablation Therapy
 
Other
 
 
Please answer the following to further define your treatment.
You answered above that you had been treated with HDR and now we would like to know if other treatments were included.
 
1. I was treated with HDR (only) without other treatments
 
2. I was treated with HDR (only) plus 6 months of less of Hormonal Ablation Therapy (HT)
 
3. I was treated with HDR (only) plus more than 6 months but not over 18 months of Hormonal Ablation Therapy (HT)
 
4. I was treated with HDR (only) plus more than 18 months of Hormonal Ablation Therapy (HT)
 
5. I was treated with HDR and EBRT (only)
 
6. I was treated with HDR and EBRT plus 6 months of less of Hormonal Ablation Therapy (HT)
 
7. I was treated with HDR and EBRT and over 6 months but not over 18 months of Hormonal Ablation Therapy (HT)
 
8. I was treated with HDR and EBRT and more than 18 months of Hormonal Ablation Therapy (HT)
 
Other
 
 
Please answer the following to further define your treatment.

We define Watchful Waiting (WW) as treatment started at diagnosis and has had no other treatment not was any other conventional treatment planned now or in the future for sure. Note that we have those who have been on WW for periods of time without moving to another treatment and those who have already moved to another treatment. If at this time you have had no other conventional treatment and do not plan any answer questions 1 through 6. The answers to questions 1 through 6 would assume that you had long term plans on staying on WW and we want to know how long have you been on WW. If you have moved on the other treatments answer questions 7 through 12. The answers to questions 7 through 12 would indicate that you had planned on WW for long term but the treatment failed (rising PSA) or you just decided to move to another treatment for other reasons.


You answered you had been on Watchful Waiting (WW) in the Initial Treatment poll and now we would like you to further define your answer by answering one of these questions.

 
1. I have been on WW for 3 months or less with no plans for future treatment unless needed.
 
2. I have been on WW for more than 3 months but 6 months or less with no plans for future treatment unless needed.
 
3. I have been of WW for more than 6 months but less than one year with no plans for future treatment unless needed.
 
4. I have been on WW for more than a year but less than two with no plans for future treatment unless needed.
 
5. I have been on WW for more than two years but less than three with no plans for future treatment unless needed.
 
6. I have been on WW for more than three years with no plans for future treatment unless needed.
 
7. I was on WW for 3 months or less before staring another unplanned treatment.
 
8. I was on WW for more than 3 months but less than 6 months before staring another unplanned treatment.
 
9. I was on WW for more than 6 months but less than 12 months before staring another unplanned treatment.
 
10. I was on WW for more than a year but less than two years before I started another unplanned treatment.
 
11. I was on WW for more than two years but less than three years before I started another unplanned treatment
 
12. I was on WW for more than three years before I started another unplanned treatment
 
Other
 
 
Age
What was your age at the time you were diagnosed.
 
1. Below 40
 
2. 40 but less than 50
 
3. 50 but less than 60
 
4. 60 but less than 70
 
5. 70 but less than 80
 
6. 80 and over
 
 
Diagnostic Information
What was the last PSA prior to or at diagnosis?
 
1 - 0.2 or less
 
2 - 0.21 to less than 0.5
 
3 - 0.51 to less than 1.0
 
4 - 1.1 but less than 3.0
 
5 - 3.1 but less than 10.0
 
6 - 10.1 but less than 20.0
 
7 - Over 20
 

What was your Stage at the time of the first DRE exam or diagnosis.
 
1. T1a, T1b
 
2. T1c, T2a
 
3. T2b
 
4. T2c
 
5. T3a, b, or c
 
6. T4a, b, or c
 
Other
 
 

What was your Gleason Score and total at the time of the first biopsy. The answer would be a combination like 3+4=7.
 
1. Below 3+3=6 (below a total of 6)
 
2. 3+3=6
 
3. 3+4=7
 
4. 4+3=7
 
5. 3+5=8 or 5+3=8
 
5. 4+4=8
 
6. 4+5=9
 
7. 5+4=9
 
9. 5+5=10
 
 
Latest PSA
What is your latest PSA.
 
1 - 0.2 or less
 
2 - 0.21 to less than 0.5
 
3 - 0.51 to less than 1.0
 
4 - 1.1 but less than 3.0
 
5 - 3.1 but less than 10.0
 
6 - 10.1 but less than 20.0
 
7 - Over 20
 
 
Results of the Primary Treatment
After your primary treatment as defined above, have you had confirmed failure with a rising PSA and started or planning ro start another treatment (Salvage). Please check Yes or No and make further comments in the "Other" section - but do not check "Other".
 
Yes
 
No
 
Other
 
 
Same Treatment Again
If you have to do it all over again would you make the same choices you did before. Please check Yes or No and make further comments in the "Other" section - but do not check "Other".
 
Yes
 
No
 
Other
 
Please contact [email protected] if you have any questions regarding this survey.
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