Baseline, Natural History.

1.
Natural History baseline. It will take approximately 10-15 minutes to complete the survey. You need genetic report in hand to upload a snapshot of the part of report that shows mutation info. Your survey responses are strictly confidential and data from this survey will be de-identified if shared. (Please see more on Data Sharing - Privacy Policy). 
* By filling out this survey, you agree to SMC1A Foundation Privacy Policy.
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